CORNELIA DE LANGE SYNDROME AWARENESS PROJECT

Why did I post this?

As the grandparent of a child with Cornelia De Lange Syndrome, I hope to raise awareness of this rare disorder and in turn, bring much needed support to the affected children and their families.

This awareness campaign is dedicated to my granddaughter:

AVERY VICTORIA
Born in May 2007

Cornelia De Lange Syndrome Awareness Project

We Love Avery Morell Facebook Group
fb.me URL: http://on.fb.me/weloveavery

Get Involved

Please contact us to donate your time, services or expertise to this awareness project (ie: technical, media, hosting, etc).

Helpful Links
Get a banner! http://www.urlage.com/cdls/banners New Banners! Sept 2011

Link to this project:

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- Contact me, if you need help with linking or the campaign code.

Watch the Video Tutorial Copy and Paste (blog post)

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Join the project, together we CAN make a difference!

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Disclaimer: Neither I nor this website, are affiliated with or employed by CDLS Foundation or their affiliates, nor am I a relative or friend affiliated with or employed by the CDLS Foundation. This website does not intend to suggest that the CDLS Foundation is affiliated with, approves of or sanctions this site, nor does it imply any association with the CDLS Foundations' owner, registered name, trademark name or holder (if applicable). All information contained here is for personal interest or information to the reader. Neither I nor this website seek or accept monetary (or any other type) gain from this project.

Note

Learn more about donating to the Trust Fund for beneficiary Avery Morell, please visit We Love Avery Morell on Facebook then, contact Justin the Group Administrator (and parent) to request Trust Fund donation information. Don't use Facebook? Request by Email: with Subject: "Request Trust Fund donation information."

Special thanks to GoDaddy.com for free hosting of this project.
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