CORNELIA DE LANGE SYNDROME AWARENESS PROJECT
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Why did I post this?
As the grandparent of a child with Cornelia De Lange Syndrome, I hope to raise awareness of this rare disorder and in turn, bring much needed support to the affected children and their families.This awareness campaign is dedicated to my granddaughter:
AVERY VICTORIABorn in May 2007
We Love Avery Morell Facebook Group
fb.me URL: http://on.fb.me/weloveavery
Get Involved
(open to all)Please contact us to donate your time, services or expertise to this awareness project (ie: technical, media, hosting, etc).
Submit a comment to this post with a link back to your CDLS Awareness post or message (for optional networking). Once submitted, I will feature your blog, site, forum or profile message on the CDLS Friends page (terms) with a one paragraph post (option: your text). You may use this posts' content (campaign code), create your own (encouraged) or visit the CDLS Foundation for publications. That's it, need a banner?
http://www.urlage.com/cdls/banners New Banners! Sept 2011
Link to this page:
Note: If text is highlighted, then it has been copied.
- If your clipboard is available, the code should be automatically copied after pressing the Copy button.
- If not, press the Copy button to select code (or manually select the code) then, R click, next L click Copy or press both the Ctrl and C keys on the keyboard to copy.
- The code should be copied to your clipboard for easy pasting (Ctrl and V) to your site editor or save to a text editor.
- Contact me, if you need help with linking or the campaign code.
Watch the Video Tutorial Copy and Paste (blog post)
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Share Your Story
If you have CDLS or you are a family member or caregiver, and would like to be contacted about this project, please provide your contact information via this contact form.Join the project, together we CAN make a difference!
Disclaimer: Neither I nor this website, are affiliated with or employed by CDLS Foundation or their affiliates, nor am I a relative or friend affiliated with or employed by the CDLS Foundation. This website does not intend to suggest that the CDLS Foundation is affiliated with, approves of or sanctions this site, nor does it imply any association with the CDLS Foundations' owner, registered name, trademark name or holder (if applicable). All information contained here is for personal interest or information to the reader. Neither I nor this website seek or accept monetary (or any other type) gain from this project.
Note
Learn more about donating to the Trust Fund for beneficiary Avery Morell, please visit We Love Avery Morell on Facebook then, contact Justin the Group Administrator (and parent) to request Trust Fund donation information. Don't use Facebook? Request by Email:
with Subject: "Request Trust Fund donation information."
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Special thanks to GoDaddy.com for free hosting of this project.
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